Malaysia is a weird country.
We do everything to protect disabled children and try to let them grow healthy and strong and smart.
BUT once they are grown they aren't allowed the ability to find work they want in the companies that have accepted them BECAUSE these companies aren't accessible and don't have disabled friendly facilities.
They aren't allowed to be independent BECAUSE everything around them wasn't made to allow them to do things themselves.
So how then, you've raised a disabled child to believe in themselves but society hasn't fought enough for equal rights to life and living because adults aren't as important as children.

When I think of this, I come to a conclusion that you should have let us die.

Also,
I just found out that Malaysia is a State signatory of the UN Convention on the Rights of Persons with Disabilities which I find interesting because nothing is done to follow this pun.

Also, someone wrote an entire Journal on Employment of PWD in Malaysia: Drivers and Inhibitors and it looks like there's more inhibitors than there are drivers.

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Today we talk about mobility devices that have allowed PWDs to explore terrains in non-conventional wheelchairs.

http://www.delichon.uk/shop/hippocampe/beach-wheelchairs

Okay, so I'm horrible at keeping up with my posts for IAMOGP.

So here's a backdated updat from the last 2 weeks summarised into one sentence:
I feel stronger, maybe.
(Dumbells getting to be more manageable, might be able to increase in a month, ditto with cardio intensity.)

Aside from that... Patreon?
Mini Projects that I should be arsed to do every month?
RESIN CRAFT/JEWELLERY making?
Art.

Aaaaaaaaaart. I should really get started.

I have no raison d'être.

:(

On another note,

This just happened... (click to read.)

And then I photoshopped the poster appropriately...

Took half an hour and it's because I was bored.

I AM MY OWN GUINEA PIG!!! (IAMOGP) -- or eeamogupuh for short.)

Day 6 2mg, twice a day
First Dose at 8AM
Second Dose at about 4PM
Heart Palpitations: None

Thoughts:

Physio/Occu at PPUM, 830AM to 12-ish AM.
20 minutes stationary bike, Wasn't paying attention
15 minutes arm cycling.
3 reps: 2lb Bicep curls x12, front raises x12 ; 4lb shrugs x12
20 minutes leg push thingy but the machine looks like a giant old-skool sewing machine.
30 minute standing with the standing machine.

A bit of a slow, crummy kind of day. Period definitely on the way.

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I AM MY OWN GUINEA PIG!!! (IAMOGP) -- or eeamogupuh for short.)

Day 7 2mg, twice a day
First Dose at 2:15PM
Second Dose at about pm
Heart Palpitations: None

Thoughts: Actually no thoughts today.

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Binge read New Normal: Class 8. It's really good but since I binged it... I HAVE TO WAIT FOR EVERY SUNDAY FOR THE NEXT PIECE. >:(

I AM MY OWN GUINEA PIG!!! (IAMOGP) -- or eeamogupuh for short.)

Day 5 2mg, twice a day
First Dose at 12:15PM
Second Dose at about 10pm
Heart Palpitations: None

Thoughts: Not much to comment on today. Stayed at home. I think my period is on the way so legs are taking a bit of a beating and back hurts.

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Okay, I admit to having a soft spot for the dead fat F* Jabba the hutt.
His lines are pretty awesome.

http://www.completewermosguide.com/hutttranscript.html

On to...
I AM MY OWN GUINEA PIG!!! (IAMOGP) -- or eeamogupuh for short.)

Day 4 2mg, twice a day
First Dose at 7:45AM
Second Dose at about 4pm
Heart Palpitations: None

Thoughts:
Physio/Occu at PPUM, 830AM to 10-ish AM.
20 minutes stationary bike, Level 2. Right leg dominant.
15 minutes arm cycling, Level 3 (5m), Level 2 (10m).
3 reps: 2lb Bicep curls x12, front raises x12 ; 4lb shrugs x12
15 minutes leg push thingy but the machine looks like a giant old-skool sewing machine.

The two-pound dumbells were... slightly lighter. Again, I'm not sure if this is all psychosomatic and I'm making all of it up but I'm pretty sure this Salbutamol thing is sort of maybe working.

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On a side note,

Anti-feminist bullshit that is unfounded has made its rounds again -- as it does every year.
Please, read this https://everydaygeopoliticshouston.wordpress.com/2015/04/10/a-reply-to-lauren-southerns-why-im-not-a-feminist/

It is imperative that you go through all the links she provided as well as go through the comments. Just read the entire thing.

On to...
I AM MY OWN GUINEA PIG!!! (IAMOGP) -- or eeamogupuh for short.)

Day 3: 2mg, twice a day
First Dose at1PM
Second Dose at about 11pm
Heart Palpitations: None

Thoughts: Did not sleep well, not really sure why, maybe taking Salbutamol too late? I don't know.
But I had a mediocre steak... Red meat is still red meat no matter how mediocre it is.

We now return to...
I AM MY OWN GUINEA PIG!!! (IAMOGP) -- or eeamogupuh for short.)

Day 2: 2mg, twice a day
First Dose at 3PM
Second Dose at about 11pm
Heart palpitations: None

Restlessness: N/A -- I'm taking this out for all future posts because it's not applicable.

Thoughts: I think it needs some sort of benchmark test thingy to be done at the end of the week. Maybe something to do with walking somewhere...

IAMOGP 1

Just wanted to introduce a new segment into this blog called

I AM MY OWN GUINEA PIG!!! (IAMOGP) -- or eeamogupuh for short.) This should be recorded for the appropriate effect.

I have just found out that our friendly neighbourhood asthma drug called Salbutamol (also known as Albuterol and sold as Ventolin) also helps SMA patients to a certain degree. I am elated to know this because of 2 things:

1) It is cheap

2) It is easily accessible

A fellow medical practitioner, let's call himTinkerbell, from the SMA family group recently gave me and a few others instructions for self dosing. He said that optimal dosage for an adult is 4mg, 3 times a day but to start of with 2mg, 3 times a day so that we can check if there are any heartrate issues as it is a stimulant.

Let's discuss how Salbutamol works for a second, this is all from Tinkerbell by the way:

- Salbutamol is a beta 2 agonist. Beta 2 receptors found in lung and heart muscles. Thus incrreasing heart rate and causes bronchiodilation. Since both are muscles, in theory, it will stimulate all muscles.
The main worry is an increased heart-rate, too fast and it will cause an irregular heartbeat (arrythmia) and the Respiratory specialists will say that it can cause ventilation/perfussion missmatch.

- If you get heart palpitations, drink plenty of water -- I'm guessing it helps you pee out the drugs.

Lower dosage if palpitations happen.

- Optimum dosage would be 4mg, 3 times a day (based on my weight apparently) but to keep things safe, start with 2mg, every 8hours.

And now, some research of my own as to the effects of Salbutamol on SMA...
- (http://www.ncbi.nlm.nih.gov/pubmed/20837492)
METHOD:
Spinal muscular atrophy (SMA) is a neuromuscular disorder caused by mutations of the SMN1 gene. Based on severity, three forms of SMA are recognised (types I-III). All patients usually have 2-4 copies of a highly homologous gene (SMN2) which produces insufficient levels of functional survival motor neuron (SMN) protein. Recently, evidence has been provided that SMN2 expression can be enhanced in vitro by salbutamol, a β2-adrenergic agonist. This compound has also been shown to improve motor function of SMA patients in two different pilot trials.
RESULTS:
A significant and constant increase in SMN2 full length transcript levels was detected; the response was directly proportional to SMN2 gene copy number.

- Salbutamol for Spinal Atrophy Type 3 

CONCLUSION:
Oral salbutamol has been well tolerated and appears to maintain, and in some cases improve motor performance in SMA III

(Click links for further readings and do a quick Google search for more info)

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Bought Salbutamol from pharmacy.21 tablets (2mg each) costs RM4.20,ergo, cheap as chips. 21 tablets for a one week test, starting tomorrow. I think I'll be doing voice recordings on my thoughts and the effects.

Day 1: 2mg, twice a day
First Dose at 2:14PM
Second Dose at about 10pm
Heart palpitations: None

Restlessness: The usual amount because i have never had a day where I just sit and do nothing.

Thoughts: It's probably psychosomatic but I feel a tad better. Also, keep in mind that I did have an intense work-out session yesterday (Weights went up from 3lb to 4lb -- it's not much for you but it's satan on my muscles) so it might be my body's just chilling out and fixing itself.